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The unexpected journey of caring : the transformation from loved one to caregiver / by Thomson, Donna,1955-; White, Zachary,author.; Woodruff, Judy,writer of foreword.;
Includes bibliographical references (pages 231-239) and index.I'm (not) a caregiver -- Disorientation : from loved one to caregiver -- Living in-between scripts -- A hyper-intolerance of others -- Audience betrayal -- Who am I becoming and why am I so hard on myself? -- When 'getting through' isn't good enough -- Re-orientation and advocacy -- Making meaning that matters now -- Begin with the basics : what is my role at home, what do I want it to be? -- It takes a village : revealing hidden assets in neighborhood -- Navigating the rough waters of transition -- Not a social network, but a care network -- How to know what you want and get what you need -- Power and love = empowerment -- Cultivating connection.Caregivers today find themselves in need of a crash course in new and unfamiliar skills. They must not only care for a loved one, but also access hidden community resources, collaborate with medical professionals, craft new narratives consistent with the changing nature of their care role, coordinate care with family, seek information and peer support using a variety of digital platforms, and negotiate social support--all while attempting to manage conflicts between work, life, and relationship roles. The moments that mark us in the transition from loved one to caregiver matter because if we don't make sense of how we are being transformed, we risk undervaluing our care experiences, denying our evolving beliefs, becoming trapped by other's misunderstandings, and feeling underappreciated, burned out, and overwhelmed. Informed by original caregiver research and proven advocacy strategies, this book speaks to caregiving as it unfolds, in all of its confusion, chaos, and messiness. Readers won't find well-intentioned clichés or care stereotypes in this book. There are no promises to help caregivers return to a life they knew before caregiving. No, this book greets caregivers where they are in their journey--new or chronic--not where others expect (or want) them to be.
Subjects: Caregivers; Caregivers; Caregivers; Home Nursing; Social Support.;
Available copies: 1 / Total copies: 1
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Share the care : how to organize a group to care for someone who is seriously ill / by Capossela, Cappy.; Warnock, Sheila.;
Includes bibliographical references (pages 321-325) and index.
Subjects: Critically ill; Critically ill; Caregivers.; Home nursing.; Caregivers.; Critical Illness; Home Nursing; Social Support.;
© 2004., Simon & Schuster,
Available copies: 1 / Total copies: 1
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Excellence in dementia care : [electronic resource] : Research into practice. by Downs, Murna.;
A comprehensive text on dementia care, drawn from research evidence, practice and the experience of people with dementia.Electronic reproduction.
Subjects: Electronic books.; Dementia.; Dementia; Dementia; Caregivers.; Social support.; Dementia; Early Onset Dementia.; Behavior.; Ethnic Groups.; Communication.; Nonfiction.; Medical.;
© 2015.,
On-line resources: http://link.overdrive.com/?websiteID=130119&titleID=2101640 -- Click to access digital title in OverDrive.;
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Aging together : dementia, friendship, and flourishing communities / by McFadden, Susan H.,author.; McFadden, John T.,author.;
Includes bibliographical references and index.Dilemmas of dementia diagnoses -- Receiving the diagnosis -- Personhood -- What is friendship? -- When our friends travel the dementia road -- Dementia fear and anxiety -- Beyond fear and anxiety -- The flourishing community -- Congregations as schools for friendship -- The things that abide -- Practicing friendship in the "thin places" -- Memory, forgetting, and the present time"Never in human history have there been so many people entering old age -- roughly one-third of whom will experience some form of neurodegeneration as they age. This seismic demographic shift will force us all to rethink how we live and deal with our aging population.Susan H. McFadden and John T. McFadden propose a radical reconstruction of our societal understanding of old age. Rather than categorize elders based on their respective cognitive consciousness, the McFaddens contend that the only humanistic, supportive, and realistic approach is to find new ways to honor and recognize the dignity, worth, and personhood of those journeying into dementia. Doing so, they argue, counters the common view of dementia as a personal tragedy shared only by close family members and replaces it with the understanding that we are all living with dementia as the baby boomers age, early screening becomes more common, and a cure remains elusive. The McFaddens' inclusive vision calls for social institutions, especially faith communities, to search out and build supportive, ongoing friendships that offer hospitality to all persons, regardless of cognitive status. Drawing on medicine, social science, philosophy, and religion to provide a broad perspective on aging, Aging Together offers a vision of relationships filled with love, joy, and hope in the face of a condition that all too often elicits anxiety, hopelessness, and despair"--Provided by publisher.
Subjects: Alzheimer Disease; Aged; Alzheimer Disease; Community Networks.; Social Support.; Spirituality.; Dementia; Dementia;
© 2011., Johns Hopkins University Press,
Available copies: 1 / Total copies: 1
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Ethics, aging, and society : the critical turn / by Holstein, Martha.; Parks, Jennifer A.; Waymack, Mark H.;
Includes bibliographical references and index.Ethics and aging : challenges to the received view -- The "critical turn" : alternative approaches to thinking about ethics -- Aging and the aged body -- The "third age" : cultural ideals, ethics, and the myth of agelessness -- Anti-aging medicine -- Aging and public policy : a normative foundation -- Care and justice : older people at home -- The nursing home : beyond medicalization -- Working with clients and patients -- What do we do now? abuse, neglect, and self-neglect -- Alzheimer's disease and an ethics of solidarity -- Beyond rational control : caring at the end of life -- Aging and disasters : facing natural and other disasters -- Bringing it all together."This book discusses second-generation issues in ethics, aging, and society by presenting critical outcomes that arise when ethics is applied to the practical concerns that occur in day-to-day elder care." "Key Features:" "Presents the first major work in over 10 years to integrate the disciplines of ethics and aging" "Includes case studies derived from day-to-day practice" "Addresses individual/clinical ethics in health and long-term care and ethical issues raised by public policy, cultural norms, and social attitudes" "Examines such critical issues as Alzheimer's disease, long-term care, ageism, public policy, anti-aging medicine, elder abuse, and natural disasters" "Explores new directions in ethical and social philosophy as they pertain to gerontology and care"--BOOK JACKET.
Subjects: Aging; Older people; Older people; Aging.; Aged; Bioethical Issues.; Geriatrics; Personal Autonomy.; Social Support.;
© c2011., Springer Pub. Co.,
Available copies: 1 / Total copies: 1
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Understanding childhood hearing loss : whole family approaches to living and thriving / by Fligor, Brian J.1974-;
Includes bibliographical references (pages 171-187) and index.Welcome to Holland ... A clinician's perspective -- What is hearing loss? How did this happen? -- How hearing is tested in infants and young children -- The impact of childhood hearing loss -- How is hearing loss treated? -- Beyond devices: How do you know interventions are working? -- Members of the management team -- Experiences and practical advice -- Understanding childhood hearing loss.Childhood hearing loss is more common than most people assume, and yet this invisible condition can rob a child of the ability to develop close emotional relationships with family and friends. This book demystifies this condition and offers approaches to caring for the child and the whole family. It is written from the perspective of a pediatric audiologist who has diagnosed hearing loss in hundreds of newborns and young children, and who has shaped clinical best-practices during his career. Hearing loss is not an all or nothing condition, but a range from very subtle, slight challenges, to very little ability to hear. The impact that hearing loss can have on a child's language, intellectual, social, and emotional development is enormous. But when the team of healthcare providers, developmental specialists, and parents are all working together, the hearing loss can become just another trait of this child, rather than the single condition that defines the child and the family's experience raising that child. This book offers an explanation of what is hearing loss for parents, describes who is on the team working with the child (and team members roles), and practical guidance for navigating what can be an uncertain path for families.
Subjects: Hearing impaired children; Hearing impaired infants; Hearing disorders in children.; Hearing disorders in infants.; Deaf children.; Hearing Loss.; Child.; Infant.; Family; Social Support.; Self-Help Groups.;
Available copies: 1 / Total copies: 1
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Downs : the history of a disability / by Wright, David,1965-;
Includes bibliographic references and index.The philosopher's idiot -- Mongols in our midst -- The simian crease -- Trisomie vingt-et-un -- Into the mainstream.For 150 years, Down's Syndrome has constituted the archetypal mental disability, easily recognizable by distinct facial anomalies and physical stigmata. This book looks at the care and treatment of Down's sufferers from Medieval Europe to the present day.
Subjects: Down syndrome.; Down syndrome; Down syndrome; Down Syndrome; Disabled Persons; History, 19th Century.; History, 20th Century.; History, 21st Century.; Political planning.; Quality of life.; Social Support.;
© 2011., Oxford University Press,
Available copies: 1 / Total copies: 1
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The helping professional's guide to end-of-life care : practical tools for emotional, social, & spiritual support for the dying / by Strada, E. Alessandra.;
"Clinical psychologist E. Alessandra Strada presents The Helping Professional's Guide to End-of-Life Care, a complete manual designed to help chaplains, nurses, physicians, hospice workers, psychotherapists, palliative care specialists, and psychologists address the psychological needs of terminally ill and dying patients and their families"--Includes bibliographical references (pages 227-242) and index.The journey through illness -- Developing a healing presence -- Working effectively with the medical team -- Meeting with the patient and the family -- The experience of grief in patients who are approaching death -- The multidimensional nature of pain -- Anxiety -- Depression -- Exploring the spiritual domain -- When death is imminent: supporting patients and caregivers -- After the death: supporting the mourning process -- Maintaining personal and professional well-being: the meaning of self-care.
Subjects: Terminal care; Terminally ill; Terminal Care; Attitude to Death.; Family Relations.; Terminally Ill;
Available copies: 1 / Total copies: 1
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Radical remission : surviving cancer against all odds / by Turner, Kelly A.;
"In her groundbreaking and inspiring book, Radical Remission: Surviving Cancer Against All Odds, Dr. Kelly A. Turner, founder of the Radical Remission Project, uncovers nine factors that can lead to a spontaneous remission from cancer--even after conventional medicine has failed.While getting her Ph.D. at the University of California, Berkley, Dr. Turner, a researcher, lecturer, and counselor in integrative oncology, was shocked to discover that no one was studying episodes of radical (or unexpected) remission--when people recover against all odds without the help of conventional medicine, or after conventional medicine has failed. She was so fascinated by this kind of remission that she embarked on a ten month trip around the world, traveling to ten different countries to interview fifty holistic healers and twenty radical remission cancer survivors about their healing practices and techniques. Her research continued by interviewing over 100 Radical Remission survivors and studying over 1000 of these cases. Her evidence presents nine common themes that she believes may help even terminal patients turn their lives around"--Includes bibliographical references (pages 291-306) and index.Radically changing your diet -- Taking control of your health -- Following your intuition -- Using herbs and supplements -- Releasing suppressed emotions -- Increasing positive emotions -- Embracing social support -- Deepening your spiritual connection -- Having strong reasons for living.
Subjects: Cancer; Cancer; Self-care, Health.;
Available copies: 1 / Total copies: 1
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Effective grief and bereavement support : the role of family, friends, colleagues, schools and support professionals / by Dyregrov, Kari.; Dyregrov, Atle.;
Includes bibliographical references (p. 256-265) and index.How does sudden death affect the close bereaved? -- What types of support do the bereaved encounter and what do they want? -- Children and young people: their situation and help needs -- How does sudden death affect social networks? - Social network support: challenges and solutions -- The main principles behind good network support -- What kinds of support can family and friends give? -- What kind of support can the school and workplace provide? -- When should professional help be brought in? -- Support for the social network.
Subjects: Bereavement; Grief; Social networks.;
© 2008., Jessica Kingsley Publishers,
Available copies: 1 / Total copies: 1
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