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Lubkin's chronic illness : impact and intervention /
Includes bibliographical references and index.Chronicity -- The illness experience -- Psychosocial adjustment -- Loss -- Spirituality -- Social isolation -- Uncertainty -- Quality of life -- Adherence -- Family caregiving -- Sexuality -- Powerlessness -- Culture -- Self management -- Client and family education -- Health promotion -- The advanced practice nurse in chronic illness -- Complementary and alternative therapies -- Models of care -- Home health care -- Long-term care -- Palliative care -- Health policy -- Rehabilitation.
- Subjects: Chronic diseases; Chronic diseases; Chronically ill; Nurse and patient.; Chronic Disease; Professional-Family Relations.; Professional-Patient Relations.; Therapeutics.;
- Available copies: 1 / Total copies: 1
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- Meeting the challenge of chronic illness / by Kane, Robert L.,1940-; Priester, Reinhard.; Totten, Annette M.(Annette Marie),1964-;
Includes bibliographical references (277-294) and index.What's so special about chronic illness care? -- The dimensions of chronic illness -- How the current system fails people with chronic illnesses -- Reorganizing care in the face of chronic illness -- The right health care workers with the right skills -- Patients and families -- Innovative technology -- Prevention -- Paying for chronic care -- The context for reform -- Next steps.
- Subjects: Chronic diseases.; Verpleegkunde.; Economische aspecten.; Psychosociale aspecten.; Chronische ziekten.; Maladies chroniques; Maladies chroniques; Aidants naturels; EÌtablissements de soins de longue dureÌe;
- © c2005., Johns Hopkins University Press,
- Available copies: 1 / Total copies: 1
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- Passages in caregiving : turning chaos into confidence / by Sheehy, Gail.;
Includes bibliographical references and index.The making of a caregiver -- The call -- Why didn't we talk about this before? -- The inner pilgrimage -- Tag, you're it! -- First turning : shock and mobilization -- How we mobilize -- What to do about Mom and Dad? -- Second turning : the new normal -- Seeking a new dream -- The education of a fearless caregiving family -- Sibling wars -- Third turning : boomerang -- When it comes back -- Chasing the tiger -- Sandwiched! -- Fourth turning : playng God -- The whole world in my hands -- Taking clay to Monet -- Guess what, we're not God! -- When a couple is divided by dementia -- Fifth turning : "I can't do this anymore!" -- Traumatic transitions -- Ready to explode -- Mind jobs : caring of a loved one with cognitive decline -- Cognitive comeback : a creative breakthrough -- Sixth turning : coming back -- Breaking down, breaking through -- Caring for the unloved one -- Seventh turning : the inbetween stage -- Beyond cure, what now? -- Coming home -- The new Latina model -- Eighth turning : the long good-bye -- The crucial choice -- Finding the "why?" to live -- Moments of presence -- Crossing the Rubicon -- Epilogue : Who will take care of us? -- From crisis to closure.No one really expects it, but at some time or another, just about everyone has been--or will be--responsible for giving care, for a sustained period, to someone close to them. Gail Sheehy, who has chronicled every major turning point for twentieth-century Americans, as well as reported on everything from politics to sexuality, knows firsthand the trials, fears, and rare joys of caregiving. Here, she takes you by the hand and shows you that you will get through this, and you will do the right things. Sheehy identifies eight crucial stages of caregiving and offers insight for successfully navigating each one. Most important, however, she points out that you don't have to be alone in this process. This book can help turn a stressful, life-altering situation into a journey that can be safely navigated and from which everyone can benefit.--From publisher description.
- Subjects: Caregivers.; Chronically ill; Chronically ill; Home nursing.; Chronic Disease; Family Relations.;
- © c2010., HarperCollins,
- Available copies: 1 / Total copies: 1
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- The invisible kingdom : [electronic resource] : Reimagining chronic illness. by O'Rourke, Meghan.; O'Rourke, Meghan.;
Narrator: Meghan O'Rourke.A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O'Rourke delivers a revelatory investigation into this elusive category of "invisible" illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O'Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color.Requires OverDrive Listen (file size: N/A KB) or OverDrive app (file size: 254284 KB).
- Subjects: Electronic books.; Nonfiction.; Biography & Autobiography.; Health & Fitness.; Medical.;
- © 2022., Penguin Audio,
- On-line resources: http://link.overdrive.com/?websiteID=130119&titleID=6360005 -- Click to access digital title in OverDrive.;
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- The complete resource guide for people with chronic illness / by Mars, Laura,editor.; Grey House Publishing, Inc.;
Includes bibliographical references, and indexes.This resource guide is structured around the 89 most prevalent chronic illnesses and provides a comprehensive overview of the support services and information resources available for people diagnosed with a chronic illness. Each chronic illness has its own chapter and contains a brief description in layman's language followed by important resources.
- Subjects: Chronic diseases; Chronic diseases;
- Available copies: 1 / Total copies: 1
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- In the kingdom of the sick : a social history of chronic illness in America / by Edwards, Laurie(Laurie Elizabeth);
Includes bibliographical references (pages 225-235) and index."More than 133 million Americans now live with chronic illness, accounting for nearly three quarters of all health care dollars and untold pain, disability, and heartbreak. Patients with diseases as varied as HIV, cancer, or type 2 diabetes have been stigmatized, accused of causing their illnesses through their lifestyle choices. people with irritable bowel syndrome and female patients with chronic fatigue syndrome have been told their symptoms were due to anxiety; and millions of people with chronic pain have faced skepticism from physicians and public alike."--Back cover.
- Subjects: Chronic diseases; Chronically ill;
- Available copies: 1 / Total copies: 1
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- Managing long-term conditions and chronic illness in primary care : a guide to good practice / by Carrier, Judith,1960-;
Includes bibliographical references and index.Social and political background -- Physical, psychological, and psychosocial impact of living with a LTC and social influences on health -- Case management and disease-specific care management -- Importance of self-management -- Motivational interviewing -- How to identify a person with a long-term condition -- Effective management of people with a long-term condition -- Evidence-based practice -- Case scenarios -- Nutritional and medication management.
- Subjects: Chronic diseases; Primary care (Medicine); Chronic Disease; Nursing Care; Case Management.; Long-Term Care.; Primary Health Care.;
- Available copies: 1 / Total copies: 1
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- Surviving and thriving with an invisible chronic illness : how to stay sane and live one step ahead of your symptoms / by Jacqueline, Ilana.;
"In this much-needed guide, popular blogger Ilana Jacqueline writes poignantly about her experience living with two debilitating, yet invisible autoimmune diseases, and offers sound advice and practical tips for living with a chronic illness or disability that others can't see. Readers will learn to deal with doctors who don't understand, are of little or no help, or outright dismiss their condition. They will also learn how to navigate friendships, family, relationships, work, and school; overcome body image and self-esteem issues; become their own best advocate; create a support system; and live an engaged and values-driven life"--Includes bibliographical references.Accepting your life with chronic illness -- Self-compassion and rising above self-defeating thoughts -- What they're going to say about you -- Making new friendships and salvaging old ones -- Dating and relationships -- Creating a support system -- The world won't wait : school and work -- Remaining independent -- Becoming your own patient advocate -- Thriving with chronic illness.
- Subjects: Chronic diseases; Self-care, Health.; Patient advocacy.; Mind and body.; Autoimmune diseases.; Chronic Disease; Patient Advocacy.;
- Available copies: 1 / Total copies: 1
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- What's making our children sick? : how industrial food is causing an epidemic of chronic illness, and what parents (and doctors) can do about it / by Perro, Michelle.;
"Exploring the links between GM foods, glyphosate, and gut health -- With chronic disorders among American children reaching epidemic levels, hundreds of thousands of parents are desperately seeking solutions to their children's declining health, often with little medical guidance from the experts. What's Making Our Children Sick? convincingly explains how agrochemical industrial production and genetic modification of foods is a culprit in this epidemic. Is it the only culprit? No. Most chronic health disorders have multiple causes and require careful disentanglement and complex treatments. But what if toxicants in our foods are a culprit, one that, if corrected, could lead to tangible results and increased health? Using patient accounts of their clinical experiences and new medical insights about pathogenesis of chronic pediatric disorders -- taking us into gut dysfunction and the microbiome, as well as the politics of food science -- this book connects the dots to explain our kids' ailing health. What's Making Our Children Sick? explores the frightening links between our efforts to create higher-yield, cost-efficient foods and an explosion of childhood morbidity, but it also offers hope and a path to effecting change. The predicament we now face is simple. Agroindustrial "innovation" in a previous era hoped to prevent the ecosystem disaster of DDT predicted in Rachel Carson's seminal book in 1962, Silent Spring. However, this industrial agriculture movement has created a worse disaster: a toxic environment and, consequently, a toxic food supply. Pesticide use is at an all-time high, despite the fact that biotechnologies aimed to reduce the need for them in the first place. Today these chemicals find their way into our livestock and food crop industries and ultimately onto our plates. Many of these pesticides are the modern day equivalent of DDT. However, scant research exists on the chemical soup of poisons that our children consume on a daily basis. As our food supply environment reels under the pressures of industrialization via agrochemicals, our kids have become the walking evidence of this failed experiment. What's Making Our Children Sick? exposes our current predicament and offers insight on the medical responses that are available, both to heal our kids and to reverse the compromised health of our food supply."--Includes bibliographical references and index.The perfect storm of toxic food, sick kids and the limits of medicine -- Going beyond the band-aid to help chronically sick kids -- Food-focused medicine for a pharmaceutical-heavy world -- A second silent spring (or, good intentions gone awry) -- The family eating modern industrial foods : almost everyone is sick -- The gut microbiome, symbiosis, and dysbiosis -- Unconventional medicine for treating gut dysfunction -- Leaky gut : a key to understanding pesticide impact on health? -- Chronic exposure : contamination as a way of life -- The making of modern industrialized food -- The GM-food debate : controversy, politics, and truth -- Going with our glyphosate-filled gut -- Can getting rid of GM foods improve mental health? -- Can autism spectrum disorder be improved by way of gut health? -- Can gut health improve other cognitive problems? -- Making sense of comorbidities in children -- Evidence-based medicine and ecosystem health : why not ecomedicine? -- Warrior moms : the call to action.
- Subjects: Chronically ill children; Food industry and trade; Genetically modified foods; Child rearing;
- Available copies: 1 / Total copies: 1
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- Everything, everything / by Yoon, Nicola.; Yoon, David,illustrator.;
"The story of a teenage girl who's literally allergic to the outside world. When a new family moves in next door, she begins a complicated romance that challenges everything she's ever known. The narrative unfolds via vignettes, diary entries, texts, charts, lists, illustrations, and more"--
- Subjects: Young adult fiction.; Chronically ill children; Severe combined immunodeficiency; First loves; Mothers and daughters; Parent and teenager; Racially mixed people; Friendship; Friendship; Love; Allergy; Racially mixed people;
- Available copies: 1 / Total copies: 1
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