The gene machine : how genetic technologies are changing the way we have kids--and the kids we have
- 1 of 1 copy available at Kirtland Community College.
0 current holds with 1 total copy.
|Location||Call Number / Copy Notes||Barcode||Shelving Location||Status||Due Date|
|Kirtland Community College Library||RB 155 .R63 2017||30775305524713||General Collection||Available||-|
- ISBN: 9780374160784
- ISBN: 0374160783
- ISBN: 9780374713966
272 pages ; 24 cm
- Edition: First edition.
- Publisher: New York : Scientific American / Farrar, Straus and Giroux, 2017.
|Bibliography, etc. Note:||Includes bibliographical references (pages 231-255) and index.|
|Formatted Contents Note:||Introduction -- How the Jews beat Tay-Sachs : screening for disease before pregnancy -- Playing God : how preimplantation genetic diagnosis is rewriting family history -- The other scarlet "A" : abortion's relationship to genetic testing -- Silencing a gene : the future of Down syndrome -- What do parents want to know? : grappling with variants of unknown significance -- The right to an open future : navigating the return of results -- How to hunt a zebra : ending the rare-disease diagnostic odyssey -- The genie in the bottle : sequencing newborn babies.|
|Summary, etc.:||"Is screening for disease in an embryo a humane form of family planning or a slippery slope toward eugenics? Should doctors tell you that your infant daughter is genetically predisposed to breast cancer? If tests revealed that your toddler has a genetic mutation whose significance isn't clear, would you want to know? In The Gene Machine, the award-winning journalist Bonnie Rochman deftly explores these hot-button questions, guiding us through the new frontier of gene technology and how it is transforming medicine, bioethics, health care, and the factors that shape a family. Rochman tells the stories of scientists working to unlock the secrets of the human genome; genetic counselors and spiritual advisers guiding mothers and fathers through life-changing choices; and, of course, parents (including Rochman herself) grappling with revelations that are sometimes joyous, sometimes heartbreaking, but always profound. She navigates the dizzying and constantly expanding array of prenatal and postnatal tests, from carrier screening to genome sequencing, while considering how access to more tests is altering perceptions of disability and changing the conversation about what sort of life is worth living and who draws the line. Along the way, she highlights the most urgent ethical quandary: Is this technology a triumph of modern medicine or a Pandora's box of possibilities? Propelled by human narratives and meticulously reported, The Gene Machine is both a scientific road map and a meditation on our power to shape the future. It is a book that gets to the very core of what it means to be human."--Dust jacket.|
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