Childhood cancer : a parent's guide to solid tumor cancers
Record details
- ISBN: 9781941089903 (paperback : alkaline paper)
- ISBN: 1941089909 (paperback : alkaline paper)
-
Physical Description:
print
xxi, 549 pages : illustrations ; 24 cm. - Edition: Third edition.
- Publisher: Bellingham, WA : Childhood Cancer Guides, 2016.
- Copyright: ©2016
Content descriptions
General Note: | Revision of: Childhood cancer / Honna Janes-Hodder & Nancy Keene. 2002. 2nd ed. |
Bibliography, etc. Note: | Includes bibliographical references (pages 515-528) and index. |
Formatted Contents Note: | Diagnosis -- Bone sarcomas -- Liver cancers -- Neuroblastoma -- Retinoblastoma -- Soft tissue sarcomas -- Kidney tumors -- Telling your child and others -- Choosing a treatment -- Coping with procedures -- Forming a partnership with the medical team -- Hospitalization -- Venous catheters -- Surgery -- Chemotherapy -- Common side effects of treatment -- Radiation therapy -- Stem cell transplantation -- Siblings -- Family and friends -- Communications and behavior -- School -- Sources of support -- Nutrition -- Medical and financial record-keeping -- End of treatment and beyond -- Recurrence -- Death and bereavement -- Appendix A: Blood tests and what they mean -- Appendix B: Resource organizations -- Appendix C: Books, websites, and support groups. |
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Subject: | Cancer in children Popular works Cancer Patients Anecdotes Cancer Patients Family relationships Anecdotes |
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Available copies
- 1 of 1 copy available at Kirtland Community College.
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- 0 current holds with 1 total copy.
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Location | Call Number / Copy Notes | Barcode | Shelving Location | Status | Due Date |
---|---|---|---|---|---|
Kirtland Community College Library | RC 281 .C4 S68 2016 | 30775305516529 | General Collection | Available | - |
Childhood Cancer : A Parent's Guide to Solid Tumor Cancers
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Table of Contents
Childhood Cancer : A Parent's Guide to Solid Tumor Cancers
Section | Section Description | Page Number |
---|---|---|
Foreword | p. xv | |
Introduction | p. xvii | |
1 | Diagnosis | p. 1 |
Signs and symptoms | p. 1 | |
Where should your child receive treatment? | p. 2 | |
Physical responses | p. 3 | |
Emotional responses | p. 3 | |
The immediate future | p. 9 | |
2 | Bone Sarcomas | p. 11 |
The skeletal system | p. 11 | |
Osteosarcoma | p. 12 | |
Ewing sarcoma family of tumors | p. 21 | |
Information on standard treatments | p. 26 | |
3 | Liver Cancers | p. 27 |
The liver | p. 27 | |
Signs and symptoms | p. 29 | |
Diagnosis | p. 29 | |
Hepatohlastoma | p. 30 | |
Hepatocellular carcinoma | p. 34 | |
Undifferentiated embryonal sarcoma | p. 36 | |
Choriocarcinoma of the liver | p. 37 | |
Liver transplantation | p. 37 | |
Information on standard treatments | p. 40 | |
4 | Neuroblastoma | p. 41 |
The sympathetic nervous system | p. 41 | |
The adrenal glands | p. 41 | |
Who gets neuroblastoma? | p. 42 | |
Signs and symptoms | p. 44 | |
Diagnosis | p. 45 | |
Staging | p. 47 | |
Prognosis | p. 48 | |
Treatment | p. 49 | |
Information on standard treatments | p. 53 | |
Newer treatment approaches | p. 54 | |
5 | Retinoblastoma | p. 55 |
The eve | p. 55 | |
Who gets retinoblastoma? | p. 57 | |
Signs and symptoms | p. 60 | |
Diagnosis and staging | p. 61 | |
Prognosis | p. 63 | |
Treatment | p. 63 | |
Information on standard treatments | p. 69 | |
6 | Soft Tissue Sarcomas | p. 71 |
Muscles and connective tissues | p. 71 | |
Signs and symptoms | p. 72 | |
Diagnosis of soft tissue sarcomas | p. 74 | |
Rhabdomyosarcoma | p. 75 | |
Non-rhabdomyosarcoma soft tissue sarcomas | p. 82 | |
Information on standard treatments | p. 85 | |
7 | Kidney Tumors | p. 87 |
The kidneys | p. 87 | |
Signs and symptoms of kidney tumors | p. 88 | |
Wilms tumor | p. 89 | |
Other types of childhood kidney cancers | p. 96 | |
Information on standard treatments | p. 99 | |
8 | Telling Your Child and Others | p. 101 |
Telling your child | p. 101 | |
Telling the siblings | p. 107 | |
Notifying the family | p. 108 | |
Notifying friends and neighbors | p. 108 | |
Notifying your child's school | p. 109 | |
9 | Choosing a Treatment | p. 111 |
Treatment basics | p. 111 | |
Standard treatment | p. 111 | |
The protocol | p. 112 | |
Clinical trials | p. 113 | |
Making a decision | p. 121 | |
The entire clinical trial document | p. 123 | |
Removing your child from a clinical trial | p. 124 | |
Protocol changes | p. 124 | |
10 | Coping with Procedures | p. 125 |
Planning for procedures | p. 125 | |
Pain management | p. 127 | |
Procedures | p. 133 | |
11 | Forming a Partnership with the Medical Team | p. 155 |
Choosing a hospital | p. 155 | |
The tumor board | p. 158 | |
Finding an oncologist | p. 158 | |
Types of relationships | p. 159 | |
Communication | p. 161 | |
Getting a second opinion | p. 165 | |
Conflict resolution | p. 166 | |
Changing doctors | p. 168 | |
12 | Hospitalization | p. 171 |
The room | p. 171 | |
The floor | p. 173 | |
Food | p. 173 | |
Parking | p. 174 | |
The endless waiting | p. 174 | |
Working with the staff | p. 176 | |
Staying with your child | p. 177 | |
Preventing mistakes | p. 178 | |
Playing | p. 179 | |
13 | Venous Catheters | p. 181 |
External catheter | p. 181 | |
Subcutaneous port | p. 187 | |
Peripherally inserted central catheter | p. 192 | |
Cost | p. 194 | |
Choosing not to use a catheter | p. 195 | |
Making a decision | p. 196 | |
Adhesives | p. 197 | |
14 | Surgery | p. 199 |
Pediatric surgeons | p. 199 | |
Types of surgery | p. 200 | |
Presurgical evaluation | p. 203 | |
Anesthesia | p. 206 | |
The surgery | p. 207 | |
Discharge | p. 208 | |
Rehabilitation | p. 209 | |
15 | Chemotherapy | p. 211 |
How chemotherapy drugs work | p. 211 | |
How chemotherapy drugs are given | p. 212 | |
Dosages | p. 213 | |
Different responses to medications | p. 213 | |
Questions to ask the doctor | p. 214 | |
Guidelines for calling the doctor | p. 215 | |
Chemotherapy drug list | p. 215 | |
Chemotherapy drugs and their possible side effects | p. 216 | |
Prophylactic antibiotics | p. 231 | |
Colony-stimulating factors | p. 232 | |
Antinausea drugs used during chemotherapy | p. 233 | |
Drugs used to relieve pain | p. 238 | |
Topical anesthetics to prevent pain | p. 243 | |
Complementary treatments | p. 244 | |
Alternative treatments | p. 244 | |
16 | Common Side Effects of Treatment | p. 247 |
Bed wetting | p. 247 | |
Changes in taste and smell | p. 249 | |
Constipation | p. 249 | |
Dental problems | p. 250 | |
Diarrhea | p. 251 | |
Fatigue and weakness | p. 253 | |
Hair loss | p. 255 | |
Learning disabilities | p. 258 | |
Low blood cell counts | p. 258 | |
Mouth and throat sores | p. 262 | |
Nausea and vomiting | p. 263 | |
Rehabilitation needs | p. 265 | |
Serious illnesses | p. 267 | |
Skin and nail problems | p. 269 | |
Can pets transmit diseases? | p. 270 | |
17 | Radiation Therapy | p. 273 |
Children who need radiation therapy | p. 273 | |
Types of radiation therapy | p. 274 | |
Questions to ask about radiation treatment | p. 277 | |
Where should your child go for radiation treatment? | p. 277 | |
Radiation oncologist | p. 278 | |
Radiation therapist | p. 278 | |
Immobilization devices | p. 278 | |
Sedation | p. 280 | |
What to expect during a radiation treatment | p. 281 | |
Possible short-term side effects | p. 285 | |
Possible long-term side effects | p. 287 | |
18 | Stem Cell Transplantation | p. 289 |
What is a peripheral blood stem cell transplant? | p. 289 | |
When are transplants necessary? | p. 290 | |
Choosing a transplant center | p. 291 | |
Stem cell harvest and storage | p. 293 | |
The transplant | p. 294 | |
Emotional responses | p. 296 | |
Paying for the transplant | p. 297 | |
Complications after transplant | p. 298 | |
Long-term side effects | p. 302 | |
19 | Siblings | p. 305 |
Emotional responses of the siblings | p. 305 | |
Sibling experiences | p. 311 | |
Helping siblings cope | p. 318 | |
Positive outcomes for the siblings | p. 321 | |
20 | Family and Friends | p. 323 |
Restructuring family life | p. 323 | |
The extended family | p. 330 | |
Friends | p. 335 | |
21 | Communication and Behavior | p. 347 |
Communication | p. 347 | |
Common behavioral changes in children | p. 349 | |
Common behavioral changes in parents | p. 355 | |
Improving communication and discipline | p. 361 | |
22 | School | p. 369 |
Keeping the school informed | p. 369 | |
Keeping the teacher and classmates involved | p. 372 | |
Keeping up with schoolwork | p. 373 | |
Helping siblings | p. 373 | |
Returning to school | p. 374 | |
Avoiding communicable diseases | p. 378 | |
After treatment | p. 378 | |
Federal laws | p. 379 | |
Section 504 of the Rehabilitation Act of 1973 | p. 380 | |
Individuals with Disabilities Education Act | p. 380 | |
Individual healthcare plan (IHCP) | p. 390 | |
Your legal rights (Canada) | p. 391 | |
The terminally ill child and school | p. 391 | |
23 | Sources of Support | p. 393 |
Hospital social workers | p. 393 | |
Support groups for parents | p. 394 | |
Online support | p. 396 | |
Support groups for children with cancer | p. 397 | |
Support groups for siblings | p. 398 | |
Parent-to-parent programs | p. 398 | |
Hospital resource rooms | p. 399 | |
Clergy and religious community | p. 400 | |
Individual and family counseling | p. 401 | |
Camps | p. 406 | |
24 | Nutrition | p. 409 |
How treatment affects eating | p. 409 | |
What kids should eat | p. 411 | |
Making eating fun and nutritious | p. 413 | |
Vitamin supplements | p. 417 | |
What kids really eat | p. 418 | |
Dietitian/nutritionist | p. 419 | |
Parent advice | p. 419 | |
Commercial nutritional supplements | p. 420 | |
Feeding by tube and IV | p. 422 | |
25 | Medical and Financial Record-keeping | p. 425 |
Keeping medical records | p. 425 | |
Keeping financial records | p. 429 | |
Coping with insurance | p. 433 | |
Sources of financial assistance | p. 437 | |
26 | End of Treatment and Beyond | p. 441 |
Emotions | p. 441 | |
Last treatment | p. 442 | |
Catheter removal | p. 442 | |
Ceremonies | p. 444 | |
What is normal? | p. 445 | |
Initial follow-up care | p. 448 | |
Long-term follow-up care | p. 449 | |
Treatment summaries | p. 451 | |
Employment | p. 452 | |
Health insurance | p. 453 | |
27 | Recurrence | p. 457 |
Signs and symptoms | p. 457 | |
Emotional responses | p. 459 | |
Goal setting and treatment planning | p. 459 | |
Making a decision about treatment | p. 461 | |
28 | Death and Bereavement | p. 465 |
Transitioning from active treatment | p. 465 | |
Supportive care | p. 469 | |
Dying in the hospital | p. 471 | |
Dying at home | p. 473 | |
Involving siblings | p. 474 | |
The funeral | p. 475 | |
The role of family and friends | p. 476 | |
Sibling grief | p. 482 | |
Parental grief | p. 483 | |
Appendices | ||
A | Blood Tests and What They Mean | p. 489 |
Values for healthy children | p. 489 | |
Values for children on chemotherapy | p. 490 | |
Common blood tests | p. 491 | |
Your child's pattern | p. 495 | |
B | Resource Organizations | p. 497 |
Solid tumor organizations (United States) | p. 498 | |
Solid tumor organizations (Canada) | p. 499 | |
Solid tumor organizations (Australia) | p. 499 | |
Solid tumor organization (Germany) | p. 500 | |
Other service organizations (United States) | p. 500 | |
Other service organizations (Canada) | p. 503 | |
Other service organizations (Australia) | p. 504 | |
Camps | p. 505 | |
Educational and legal support | p. 505 | |
Financial help | p. 507 | |
Free air services (United States) | p. 507 | |
Free air service (Canada) | p. 509 | |
Free air service (Australia) | p. 509 | |
Insurance | p. 509 | |
Medications (low-cost or free) | p. 509 | |
Sports organizations | p. 510 | |
Stem cell transplantation | p. 510 | |
Wish fulfillment organizations (United States) | p. 511 | |
Wish fulfillment organizations (Canada) | p. 512 | |
Wish fulfillment organizations (Australia) | p. 512 | |
Hospice and bereavement (United Stales) | p. 513 | |
Hospice and bereavement (Canada) | p. 513 | |
Hospice and bereavement (Australia) | p. 513 | |
C | Books, Websites, and Support Groups | p. 515 |
How to find the information you need | p. 515 | |
Books | p. 516 | |
Websites | p. 524 | |
Online support groups | p. 527 | |
Index | p. 529 |